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Barrie baby healthy after groundbreaking surgery while still in the womb (3 photos)

Tiny 'Iron Man' Sebastian thriving after in-utero surgery

First-time mom Kristine Barry is marking the happy milestones that come with being a parent.

On this day, her two-month-old son Sebastian is grabbing the ring of a toy for the first time and holding on with a firm grip.

Kristine, 25, is settling in to life at home with her baby boy who has already gone undergone two surgeries - one even before he was born.

"It didn't really occur to us how ground-breaking this was. We were just doing whatever we could to save his life," Kristine said, watching lovingly as Sebastian goos and kicks while laying on a blanket.

"That's what we were focussed on and in hindsight the doctor never told us this was groundbreaking - just that it had never been done before. He didn't really put an emphasis on how big this was which was probably a good thing."

Weeks before his birth on May 23, doctors discovered that Sebastian had two congenital heart defects.

A team of doctors at the Hospital for Sick Children and Mount Sinai Hospital performed a life-saving, in-utero procedure to poke a hole in the wall between the upper chambers of Sebastian's tiny heart, which had developed with no opening, followed by an operation after birth to repair his major cardiac arteries, which weren't in the proper locations.    

Kristine and husband Christopher Havill, 27, brought their little fighter home to Barrie June 7 and he's thriving at a happy, healthy ten pounds.

"My first week alone was quite something. I've never had to take care of a baby before. It was stressful,"  said Kristine. 

I"At first it was hard to process the whole procedure and his surgery. And hard to process 'hey we have a baby' and now to process all ths media attention. It's been a whirlwind that's for sure."

So far, there's always an anxiety in the back of Kristine's mind where she finds herself checking Sebastian's breath and looking for any signs of congestive heart failure, even though it's very unlikely because his heart is fixed.

But he packs a lot of inspiration in his tiny little frame.

"He's very special.  He's so strong. I just look at him and I see strength.  He makes me feel stronger. I've never been so proud of anyone in my entire life.  What he was capable of in the womb and then after his open heart surgery too. He's so resilient."

And Sebastian has already earned a super hero nickname: 'Iron Man.'

"After his open heart surgery we found out that when they went to close his chest they did it with surgical wire. So his poppa went and bought him an Iron Man because they both have wires in their chest. So that's his super hero affiliate," Kristine said with a smile.

"Other than that we just call him little man, pumpkin. Daddy likes to call him 'pooper'. He's earned that title many times over," she laughed. 

 

 

 


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Sue Sgambati

About the Author: Sue Sgambati

Sue has had a 30-year career in journalism working for print, radio and TV. She is a proud member of the Barrie community.
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