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Taylum's out of surgery and doing fine!

Taylum was born April 10, 2013 with polycistic kidney disease , which caused large cysts to grow on both his kidneys. He had to be airlifted to Toronto immediately because his kidneys were on the verge of failing.
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Desirée Lamoureux posted this photo of her and her son Taylum to Facebook Wednesday after he received a kidney transplant earlier that day. Lamoureux said in Facebook updates that Taylum's new kidney appears to be working great. Supplied photo.
Taylum was born April 10, 2013 with polycistic kidney disease, which caused large cysts to grow on both his kidneys.

He had to be airlifted to Toronto immediately because his kidneys were on the verge of failing.

Doctors removed one of his kidneys after five weeks, and the second after 10.

After that, he had to go on hemodialysis — a treatment not offered in Sudbury for infants — six days a week.

In April, his mother announced an anonymous donor had come forward, and was prepared to donate one of her kidneys. She turned out to be a perfect match for Taylum.

“For somebody who doesn't even know you or your child, to want to donate an organ, it's kind of surreal,” Lamoureux said at the time. “Within 24 hours of her contacting me, we had given her the green light, and she was already in contact with the hospital.”

Lamoureux provided several updates of Taylum's progress Wednesday through a Facebook page she set up for his supporters, called “A Tribe for Taylum.”

Before Taylum's surgery, she shared her fears on social media.

“Both Darren (Taylum's father) and I, despite our best efforts, broke down in that sudden panic that happens when you realize you may never see your child alive again, or the same again,” Lamoureux wrote. “No war was won with just one battle; my boy has won them all so far, even the ones that brought him to death's door.

"I feel in my heart that he has a busy team of angels watching over him, and I can't help but think there must be a greater purpose to him surviving despite all the odds being stacked against him. I'm so unbelievably proud of you Taylum.”

After his surgery, Lamoureux reported Taylum needed a blood transfusion because his bloodwork showed a drop in his hemoglobin.

“They also did an ultrasound to check for any internal bleeding and prelim results didn't contain anything alarming,” Lamoureux wrote in an update Thursday morning. “We had a hard time managing his pain, but he seems to be more comfortable for the moment.”

Apart from his low hemoglobin levels, she said Taylum's new kidney has been “working great,” but added he is not out of the woods yet.

Taylum be in the Hospital for Sick Children's intensive care unit for at least a week, and will stay in a hospital ward for another week after that.

If all goes well, he'll be visiting the hospital every day for three months, for blood work and check-ups, to make sure his new kidney is functioning properly.

After those three months, if there are no complications, Taylum and his mother will be able to return home to Sudbury. But he will need to return to Toronto every two weeks for more check-ups, over a three- to six-month period.

Eventually, Taylum will need another kidney transplant. Although the record is 40 years, most kidney transplants last about 10 years.

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Jonathan Migneault

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